Curt’s Journey with Amyloidosis

On September 5, 2018, I received some news that would change my world forever. I just didn’t know it at the time when I got the call from my nephrologist. He said my kidney biopsy came back. It was positive for AL Amyloidosis.

“OK, so how do you spell that?” I asked.

I scribbled what he said on a piece of paper so I could Google the word later that evening. He told me to plan on keeping our appointment which was scheduled for the following day so we could discuss the next step.  

Amyloidosis is rare. It strikes one person in one hundred thousand according to some statistics I’ve read. There is no known cause, and there is no cure. Life expectancy from the time of diagnosis is months to a few years, with some exceptions. I first wrote about my diagnosis here.

 I’ve decided to blog about my experience with AL Amyloidsis occasionally. My intention in writing is to provide hope, perspective, and the comfort of Christ to others facing trials and difficult circumstances.

Whether it’s Amyloidosis or some other harsh circumstance, we’re rarely on the journey alone.

My wife, my love and partner in life, Jenny, is my caregiver. Last February we celebrated 40 years of marriage, for “better or worse,” as the wedding vows go. I don’t know what I’d do without her. In light of my diagnosis, we’ve reevaluated our priorities and life style as we face an uncertain future. She’s been with me every step of the way.

I also want to say thank you to those of you who are also walking this difficult path with us and have helped us in many ways, especially through your prayers.

The phrase, “After all, we’re just walking each other home,” first spoken by Ram Dass, is a useful way of thinking about our life together – interceding in prayer, and being there for each other, as we head “home” eventually entering God’s presence in eternity.

 So, please feel free to comment and respond to what I write. While the time I have to respond to comments is limited, occasionally I do. Please know that your thoughts and prayers mean a lot to me.

 Curt  

Good Night

It’s been a year since my stem cell transplant. My previous post was an update. This one is a reflection. Some readers appreciate “reflection posts” because…

Continue reading … Good Night